Wednesday, February 5, 2014

Things I Have Learned So Far...

Below is just a list of things I have learned about PTC in the past 2-3 weeks.  

  1. PTC is also called IHH (Idiopathic Interacranial Hypertension).  Basically it is like high blood pressure, but it is high spinal cord fluid pressure in my brain.
  2. Only 1 out of 100,000 people suffer from PTC.
  3. Although there is no real known cause, it does tend to occur more often in women of child-bearing age who are overweight.
  4. Every journey is unique.  After reading about some people's struggles online, I believe that my case was caught very early.
  5. IF PTC goes untreated, it could result in vision loss.
  6. You can't really cure PTC.  You control it through medicine and weight loss; however, surgery may be needed in some cases.
  7. Some people have lumbar punctures regularly to relieve the pressure.
  8. While others have surgery to have a shunt placed to have the access fluid drained into another area.  

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